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A podcast addressing shortcomings in school medicine and healthcare that result in patient harm. The focus is on the nerve damage deliberately concealed by doctors from individuals undergoing surgery for deviated septum or hypertrophic turbinates. These injuries lead to Paradoxical Obstruction, shortness of breath, extensive sleep problems, and in many cases, suicide. I delve into the injuries caused by burning or destroying turbinates, such as Empty Nose Syndrome. These injuries are often guaranteed to occur and are kept hidden by the healthcare system
Vad händer när en operation av näsmusslorna permanent förändrar hur näsan reglerar luftflödet?
I det här avsnittet går vi igenom de ofta underskattade konsekvenserna av kirurgi på näsmusslorna och de mekanismer som kan bidra till att förklara de svåra symtom som personer med Empty Nose Syndrome, ENS, kan drabbas av.
Näsmusslorna gör betydligt mer än att bara värma och fukta inandningsluften. De bidrar till att skapa och reglera nasalt motstånd, styr luftflödet genom näsan och påverkar ventilationen. De förmedlar också sensorisk information till hjärnan som är viktig för att andningen ska kännas normal och samspelar med både andningsregleringen och det autonoma nervsystemet.
När för mycket vävnad avlägsnas eller skadas kan andningen förändras på ett genomgripande sätt, trots att näsgångarna anatomiskt kan se ovanligt öppna ut.
Avsnittet tar bland annat upp förändrat luftflöde, förlust av normalt nasalt motstånd, störd andningskänsla, hyperventilation och hypokapni, påverkan på det autonoma nervsystemet, kväveoxid, tryckförhållanden i bröstkorgen, lungornas mekanik och möjliga kardiovaskulära konsekvenser.
Podcasten bygger på en längre artikel där dessa samband beskrivs mer utförligt.
Läs hela artikeln här:
https://fonderingar.blogspot.com/2024/09/operation-av-nasmusslorna-negativa.html
Sarah J. Ogden was only 22 years old when her life came to an end in 2017. Years later, her name is still remembered within the Empty Nose Syndrome community.
This episode tells Sarah’s story and explores the condition that became part of her life: Empty Nose Syndrome, or ENS. We look at why the nasal turbinates are far more than simple obstacles to airflow, how excessive turbinate reduction can leave a person with an open nasal airway yet a profound sensation of suffocation, and why breathing can become something the patient is forced to think about every minute of every day.
According to accounts preserved within the ENS community, Sarah underwent reconstructive treatment with AlloDerm and later two implant procedures in an attempt to regain normal breathing. Her official obituary does not state the circumstances of her death, but surviving ENS community accounts say that Sarah ultimately ended her own life after years of suffering.
Her story is not simply about one surgical technique or one treatment outcome. It is a reminder that an open nose is not necessarily a functioning nose — and that the turbinates, mucosa, airflow patterns and sensory system all play an essential role in making breathing feel normal.
For those of us living with Empty Nose Syndrome, Sarah’s story is part of our story too.
Learn more about Empty Nose Syndrome:
Empty Nose Syndrome After Turbinate Surgery – The Story of WWII Pilot Jack Ackland
Jack Ackland was a young pilot who wanted to continue flying. During the Second World War, he underwent extensive nasal surgery after suffering from severe sinus problems at altitude.
The surgery included resection of turbinate tissue. Instead of restoring his ability to fly, it was followed by years of pain, illness, disability and profound physical and psychological suffering.
Decades later, after reviewing Jack’s medical history, ENT professor Dr. Robert M. Meyers told Jack’s son, journalist Len Ackland, that his father’s postoperative condition would today be described as Empty Nose Syndrome.
This episode tells Jack’s story and examines why the turbinates are far more than structures that simply warm and humidify air. They help regulate nasal resistance, airflow, breathing sensation and ventilation. When these functions are permanently damaged, a nose may appear open while breathing can become profoundly abnormal.
More than eighty years after Jack’s operations, turbinate reduction and resection are still performed. His story remains relevant to patients living with Empty Nose Syndrome today.
Learn more about Empty Nose Syndrome, research, physiology and patient experiences:
This episode tells the story of Stéphane Spinhirny and the devastating consequences of nasal surgery and Empty Nose Syndrome (ENS).
It explores his severe breathing difficulties, his struggle to obtain recognition and appropriate help, and why his experience remains important to discussions about turbinate surgery, informed consent and patient safety.
Read Stéphane Spinhirny’s full story and view the supporting material:
https://empty-nose-syndrome-info.blogspot.com/2024/11/the-story-of-stephane-spinhirny.html
This podcast is intended to raise awareness and provide information about Empty Nose Syndrome.
This episode tells the story of Sam Treffry, a 34-year-old man from Australia who was diagnosed with Empty Nose Syndrome after undergoing several nasal procedures earlier in life.
Told through the public account shared by his brother, Beau Treffry, the episode follows Sam’s struggle with severe sleep and breathing problems, his withdrawal from university and work, and the suffering his family only fully understood after Sam ended his own life in October 2024.
The episode also explores what Empty Nose Syndrome can do to breathing: how the turbinates help regulate nasal resistance and airflow, condition inhaled air, and provide sensory feedback to the nervous system — and why a physically open nasal airway does not necessarily mean normal breathing.
Sam’s brother also shared a treasured memory from 2013, when the two rowed through Wolli Creek, navigated the mangroves, played chess and explored an island together.
Read Sam Treffry’s story and more information here:
https://empty-nose-syndrome-info.blogspot.com/2024/10/empty-nose-syndrome-sam-treffry-fifth.html
John Malamos was active, deeply valued by his family and friends, passionate about motorcycles and respected as an assistant manager at Costco. Then a revision rhinoplasty changed everything.
During the operation, his inferior turbinates were also reduced. According to his family, John believed he had agreed only to a correction of the earlier cosmetic surgery and had not been properly informed about the risks of altering the turbinates.
Afterward, he developed severe dryness, pain, sleeplessness and a relentless sensation of suffocation—despite having an airway that appeared open.
This documentary explores the central paradox of Empty Nose Syndrome: why breathing depends on far more than having enough physical space inside the nose. The turbinates are dynamic, vascular and densely innervated respiratory organs that help regulate airflow, resistance and the sensory feedback the brain needs to register each breath.
John travelled hundreds of miles seeking help and was eventually diagnosed with Empty Nose Syndrome. But no effective treatment was offered. In 2010, at the age of 43, after prolonged physical suffering and complete despair, John ended his own life.
His story is not an isolated case.
Learn more and read John’s full story and other documented patient accounts at Empty Nose Syndrome Information & Research:
This episode tells the story of Yaniv Oz, a young Israeli man whose health deteriorated after nasal surgery involving turbinate reduction.
Through the account of his mother, Toni Carroll, we follow Yaniv’s life before surgery, the gradual development of severe symptoms, his repeated search for medical answers, and his eventual discovery of the Empty Nose Syndrome community.
The episode also explains the physiology behind ENS — including altered nasal resistance, loss of airflow sensation, air hunger, disturbed breathing regulation, sleep disruption, autonomic stress, hyperventilation, hypocapnia, and the paradox of feeling unable to breathe despite having an excessively open nasal airway.
Yaniv died by suicide in 2018 at the age of 26, on the day he was due to meet a doctor familiar with Empty Nose Syndrome.
This episode is shared in his memory, and to increase awareness of the potentially devastating consequences of excessive turbinate reduction.
Content warning: This episode discusses severe illness, psychological suffering.
More information about Empty Nose Syndrome:
empty-nose-syndrome-info.blogspot.com
Find more information about https://empty-nose-syndrome-info.blogspot.com/2024/11/yaneiv-and-empty-nose-syndrome-yet.html
What is Empty Nose Syndrome (ENS), and how can a nose that appears open still feel obstructed or unable to provide a satisfying breath?
In this episode, we introduce Empty Nose Syndrome — a complex condition that can develop after nasal surgery, particularly when the nasal turbinates have been reduced or altered.
We explain how changes in nasal anatomy, airflow, resistance, humidification and sensory feedback can contribute to symptoms such as paradoxical nasal obstruction, air hunger, dryness, burning, disturbed breathing and severe sleep problems.
The episode also explores why ENS is more than simply having “too much space” inside the nose, and why normal nasal airflow and sensation are essential for comfortable breathing.
🎧 A concise introduction to Empty Nose Syndrome for patients, relatives, clinicians and anyone who wants to better understand the condition.
Duration: approximately 9 minutes.
Educational content only. This podcast does not replace individual medical evaluation or treatment.
Learn more about ENS here:
https://empty-nose-syndrome-info.blogspot.com/
A septoplasty and turbinate reduction was followed by a devastating and unexpected sequence of events.
In this episode, we examine a widow’s account of her husband’s experience after nasal surgery. According to her account, he developed severe symptoms immediately after the procedure, including profound sleep deprivation and abnormal nasal sensation. After seeking another medical opinion, he was diagnosed with Empty Nose Syndrome (ENS).
The episode explores what Empty Nose Syndrome is, the symptoms associated with it, the impact severe postoperative symptoms can have on a person’s life, and the questions this case raises about turbinate surgery, informed consent, postoperative care, and patient awareness.
Tragically, the woman reported that her husband later died by suicide, leaving behind his wife and their one-year-old daughter.
This episode is based on a personal account originally shared on Reddit. The circumstances described in that post have not been independently verified, and the episode does not make a legal determination regarding negligence or medical malpractice.
The purpose of this episode is to raise awareness of Empty Nose Syndrome and the potentially profound effects experienced by some patients following nasal surgery.
If you are struggling with suicidal thoughts or feel that you may be in immediate danger, please contact emergency services or a crisis service in your country.
A critical update on Empty Nose Syndrome.
For the first time, a major European research team is working toward a regenerative treatment.
This episode explains why patient participation is urgent, what is at stake, and how this research could change everything.
More info on YouTube https://youtu.be/uk3fDqoD_EA
Modena Questionnaire:
https://redcap.unimore.it/redcap/surveys/?s=ATYLYMC3DLXFXMAL
More information about the Modena project:
Contact email (CT scans / questions):
ensquestionnaire@gmail.com